1. Hilberink, S.R. (2021). The Whitney Comorbidity Index for adults with cerebral palsy: a challenge for practice. Developmental Medicine & Childhood Neurology. doi: 10.1111/dmcn.14890. Link
  2. Noten, S., Troenosemito, L.A.A., Limsukal, C., Selb, M., de Groot, V., Konijnenbelt, M., Driessen, D.M.F., Hilberink, S.R., Roebroeck, M.E., & ICF Core Set for Adults with Cerebral Palsy Study Group. (2021). Development of an ICF Core Set for adults with cerebral palsy: capturing their perspective on functioning. Developmental Medicine & Childhood Neurology. doi: 10.1111/dmcn.14841. Abstract
  3. Hilberink, S.R., & Cardol, M. (2020). Langdurige zorg is te eenzijdig ingestoken. Beleid en Maatschappij, 47, 328-331.
  4. Hilberink, S.R., Grootoonk, A., Ketelaar, M., Vos, I., Cornet, L., & Roebroeck, M.E. (2020). Focus on autonomy: Using ‘Skills for Growing Up’ in pediatric rehabilitation care. Journal of Pediatric Rehabilitation Medicine, 13, 161-167. Manuscript
  5. van der Slot, W.M.A., Benner, J.L., Brunton, L., Engel, J.E., Gallien, P., Hilberink, S.R., Mànum, G., Morgan, P., Opheim, A., Riquelme, I., Rodby-Bouquet, E., Simsek, T.T., Thorpe, D.E., van den Berg-Emons, H.J.G., Vogtle, L.K., Papagourgiou, G., & Roebroeck, M.E. (2020). Pain in adults with cerebral palsy: a systematic review and meta-analysis of individual participant data. Annals of Physical and Rehabilitation Medicine. doi: 10.1016/ Abstract
  6. van Gorp, M., Hilberink, S.R., Noten, S., Benner, J.L., Stam, H.J., van der Slot, W.M.A., & Roebroeck, M.E. (2020). Epidemiology of cerebral palsy in adulthood: A systematic review and meta-analysis of the most frequently studied outcomes. Archives of Physical Medicine and Rehabilitation, 101, 1041-1052. Abstract
  7. Bal, M.I., Roelofs, P.P.D.M., Hilberink, S.R., van Meeteren, J., Stam, H.J., Roebroeck, M.E., & Miedema, H.S. (2019). Entering the labor market: Increased employment rates of young adults with chronic physical conditions after a vocational rehabilitation program. Disability & Rehabilitation. doi: 10.1080/09638288.2019.1687764. Manuscript
  8. Schmidt, A.K., van Gorp, M., van Wely, L., Ketelaar, M., Hilberink, S.R., & Roebroeck, M.E. (2020). Autonomy in participation in cerebral palsy from childhood to adulthood. Developmental Medicine & Child Neurology, 62, 363-371. doi: 10.1111/dmcn.14366. Abstract
  9. van Doorn, P., Kruijver, E., & Hilberink, S.R. (2019). Sekszorg als therapeutische interventie bij seksueel grensoverschrijdend gedrag door man met verstandelijke beperking. Een voorbeeld van good practice met de seksuoloog als regisserend behandelaar. Tijdschrift voor Seksuologie, 43, 99-103. Abstract
  10. Hilberink, S.R., & Cardol, M. (2019). Citizenship according to the UNCRPD and in practice: a plea for a broader view. Disability & Society, 34, 326-331. Manuscript
  11. Hilberink, S.R., van Ool, M., van der Stege, H.A., van Vliet, M.C., van Heijningen-Tousain, H.J.M., de Louw, A.J., & van Staa, A.L. (2018). Skills for Growing Up-Epilepsy: An exploratory mixed methods study into a communication tool to promote autonomy and empowerment of youth with epilepsy. Epilepsy & Behavior, 86, 116-123. Abstract
  12. Lambregts, S., van Markus, F., Catsman-Berrevoets, C.E., Berger, M.A.M., de Kloet, A.J., Hilberink, S.R., & Roebroeck, M.E. (2018). Neurological outcome in children and youth with acquired brain injury two years post-injury. Developmental Neurorehabilitation, 21, 465-474. Abstract
  13. Benner, J.L., Hilberink, S.R., Veenis, T., Stam, H.J., van der Slot, W.M.A., & Roebroeck, M.E. (2017). Long-term deterioration of perceived health and functioning in adults with cerebral palsy. Archives of Physical Medicine and Rehabilitation, 98, 2196-2205. Abstract
  14. Benner, J.L., Hilberink, S.R., Veenis, T., van der Slot, W.M.A., & Roebroeck, M.E. (2017). Course of employment in adults with cerebral palsy over a 14-year period. Developmental Medicine & Child Neurology, 59, 762-768. Manuscript
  15. Sattoe, J.N.T., Hilberink, S.R., & van Staa, A.L. (2017). How to define successful transition? An exploration of consensus indicators and outcomes in young adults with chronic conditions. Child: Care, Health and Development, 43, 768-773. Abstract
  16. Hilberink, S.R., van der Slot, W.M.A., & Klem, M. (2017). Health and participation problems in older adults with long-term disability. Disability and Health Journal, 10, 361-366. Abstract
  17. Sattoe, J.N.T., Peeters, M.A.C., Hilberink, S.R., Ista, E., & van Staa, A.L. (2016). Evaluating outpatient transition clinics: a mixed-methods study protocol. BMJ Open, 6, e011926. doi: 10.1136/bmjopen-2016-011926. Manuscript
  18. van der Stege, H.A., Hilberink, S.R., Bakker, E., & van Staa, A.L. (2016). Using a board game about sexual health with young people with chronic conditions in daily practice: A research into facilitating and impeding factors. Sexuality and Disability, 34, 349-361. Abstract
  19. Ilmer, E.C., Lambregts, S.A., Berger, M.A., de Kloet, A.J., Hilberink, S.R., & Roebroeck, M.E. (2016). Health-related quality of life in children and youth with acquired brain injury: Two years after injury. European Journal of Paediatric Neurology, 20, 131-139. Abstract
  20. van der Stege, H.A., Hilberink, S.R., Visser, A.P., & van Staa, A.L. (2014). Motivational factors in discussing sexual health with adolescents with chronic conditions or disabilities. Sex Education: Sexuality, Society and Learning, 14, 635-651. Manuscript
  21. Hilberink, S.R., & Jacobs, J.E. (2014). Hoe betrouwbaar is zelfrapportage van het rookgedrag bij COPD? Huisarts en Wetenschap, 57, 346-348. Abstract
  22. Peeters, M.A.C., Hilberink, S.R., & van Staa, A.L. (2014). The road to independence: Lived experiences of youth with chronic conditions and their parents compared. Journal of Pediatric Rehabilitation Medicine: An Interdisciplinary Approach, 7, 33-42. Manuscript
  23. Sattoe, J.N.T., Hilberink, S.R. van Staa, A.L., & Bal, R. (2014). Lagging behind or not? Four distinctive social participation patterns among young adults with chronic conditions. Journal of Adolescent Health, 54, 397-403. Abstract
  24. Sattoe, J.N.T., Hilberink, S.R., Peeters, M.A.C., & van Staa, A.L. (2014). ‘Skills for Growing Up’: supporting autonomy in young people with kidney disease. Journal of Renal Care, 40, 131-139. Abstract
  25. Hilberink, S.R., Kruijver, E., Wiegerink, D.J.H.G., & Vliet Vlieland, T.P.M. (2013). A pilot implementation of an intervention to promote sexual health in adolescents and young adults in rehabilitation. Sexuality and Disability 31, 373-392. Abstract
  26. Hilberink, S.R., & Cardol, M. (2013). Agency in the twenty-first century: the emperor’s new clothes. Disability and Society, 28, 569-574. Abstract
  27. Hilberink, S.R., Jacobs, J.E., Vries, H., de, & Grol, R.P.T.M. (2013). Smoking cessation counselling in general practice for COPD smokers: determinants for general practitioners’ compliance with a treatment protocol. International Journal of Health Promotion and Education, 51, 64-74. Abstract
  28. de Kloet, A.J., Hilberink, S.R., Roebroeck, M.E., Catsman-Berrevoets, C.E., Peeters, E., van Markus-Doornbosch, F., & Vliet Vlieland, T.P.M. (2013). Youth with acquired brain injury in the Netherlands: a multicenter study. Brain Injury, 7-8, 843-849. Abstract
  29. Bindels-de Heus, G.C.B., van Staa, A.L., van Vliet, I., Ewals, F.V.P.M, & Hilberink, S.R. (2013). Transferring young people with profound intellectual and multiple disabilities from pediatric to adult medical care: parents’ experiences and recommendations. Intellectual and Developmental Disabilities, 51, 176-189. Abstract
  30. van der Slot, W.M.A., Nieuwenhuijsen, C., van den Berg-Emons, R.J., Bergen, M.P., Hilberink, S.R., Stam, H.J., & Roebroeck, M.E. (2012). Chronic pain, fatigue and depressive symptoms in adults with spastic bilateral cerebral palsy. Developmental Medicine & Child Neurology, 54, 836-842. Manuscript
  31. Rosseel, J.P., Jacobs, J.E., Hilberink, S.R., Segaar, D., Akkermans, R., Maassen, I.M., Plasschaert, A.J.M. & Grol, R.P.T.M. (2012). Patient-reported feedback promotes delivery of smoking cessation advice by dental professionals. Journal of Health Promotion and Education, 50, 101-110. Abstract
  32. van Pelt, E.D., de Kloet, A., Hilberink, S.R., Lambregts, S.A., Peeters, E., Roebroeck, M.E., & Catsman-Berrevoets, C.E. (2011). The incidence of traumatic brain injury in young people in the catchment area of the University Hospital Rotterdam, The Netherlands. European Journal of  Paediatric Neurology, 15, 519-526. Abstract
  33. Rosseel, J.P., Jacobs, J.E., Hilberink, S.R., Maassen, I., Segaar, D., Plasschaert, A.J.M., & Grol, R.P.T.M. (2011). Experienced barriers and facilitators for integrating smoking cessation advice and support in daily dental practice. A short report. British Dental Journal, 210, E10. Manuscript
  34. Hilberink, S.R., Jacobs, J.E., Breteler, M.H.M., de Vries, H., & Grol, R.P.T.M. (2011). General practice counseling for patients with chronic obstructive pulmonary disease to quit smoking: impact after 1 year of two complex interventions. Patient Education and Counseling, 83, 120-124. Abstract
  35. Hilberink, S.R., Jacobs, J.E., Opstal, S. van, Weijden, T. van der, Keegstra, J., Kempers, P.L.J., Muris, J.W.M., Grol, R.P.T.M., & de Vries, H. (2011). Validation of smoking cessation self-reported by patients with chronic obstructive pulmonary disease. International Journal of General Medicine, 4, 85-90. Manuscript
  36. van Staa, A.L., van der Stege, H.A., Jedeloo, S., Moll, H.A., & Hilberink, S.R. (2011). Readiness to Transfer to Adult Care of Adolescents with Chronic Conditions: Exploration of Associated Factors. Journal of Adolescent Health, 48, 295-302. Abstract
  37. van Staa, A.L., van, Eysink Smeets-van de Burgt, A.E., Stege, H.A., van der, & Hilberink, S.R. (2010). Transitie in zorg van jongeren met chronische aandoeningen in Nederland nog onder de maat. Tijdschrift voor Kindergeneeskunde, 78, 227-236. Abstract
  38. van der Stege, H.A., van Staa, A.L., Hilberink, S.R., & Visser, A.Ph. (2010). Let’s Talk about Sex: Playing a board game to stimulate communication about sexual health with adolescents with chronic conditions. Patient Education and Counseling, 81, 324-331. Abstract
  39. Rosseel, J.P., Hilberink, S.R., Jacobs, J.E., Maassen, I..M, Plasschaert, A.J., & Grol, R.P. (2010). Are oral health complaints related to smoking cessation intentions? Community Dentistry and Oral Epidemiology, 38, 470-478. Abstract
  40. Rosseel, J.P., Jacobs, J.E., Hilberink, S.R., Maassen, I.M., Allard, R.H., Plasschaert, A.J., & Grol, R.P. (2009). What determines the provision of smoking cessation advice and counselling by dental care teams? British Dental Journal, 206, E13. Manuscript
  41. Wichers, M., Hilberink, S., Roebroeck, M.E., Nieuwenhuizen, O., van, & Stam, H.J. (2009). Motor impairments and activity limitations in children with spastic cerebral palsy – a Dutch population-based study. Journal of Rehabilitation Medicine, 41, 367-374. Manuscript
  42. Hilberink, S.R., Roebroeck, M.E., Nieuwstraten, W., Jalink, L., Verheijden, J.M.A., & Stam, H.J. (2007). Health Issues in young Adults with Cerebral Palsy: Towards a Life-Span Perspective. Journal of Rehabilitation Medicine, 39, 605-611. Manuscript
  43. Egger, J.I.M., Gringhuis, M., Breteler, M.A., DeMey, H.R.A., Wingbermühle, E., Derksen, J.J.L., & Hilberink, S. (2007). MMPI-2 clusters of alcohol dependent patients and the relation with Cloninger’s temperament-character inventory. Acta Neuropsychiatrica, 19, 238-243. Manuscript
  44. Hilberink, S.R., Jacobs, J.E., Schlösser, M., Grol, R.P.T.M., & de Vries, H. (2006). Characteristics of patients with COPD in three motivational stages related to smoking cessation. Patient Education and Counseling, 61, 449-457. Abstract
  45. Hilberink, S.R., Jacobs, J.E., Bottema, B.J.A.M., de Vries, H., & Grol, R.P.T.M. (2005). Smoking cessation of patients with COPD in daily general practice (SMOCC): Six months’ results. Preventive Medicine, 41, 822-827. Abstract
  46. Willemsen, M.C., Görts, C.A., Soelen, P., van, Jonkers, R., Hilberink, S.R. (2004). Exposure to environmental tobacco smoke (ETS) and determinants of support for complete smoking bans in psychiatric settings. Tobacco Control, 13, 180-185. Manuscript
  47. Kan, C.C., Hilberink, S.R., & Breteler, M.H.M. (2004). Determination of the main risk factors for benzodiazepine dependence using a multivariate and multidimensional approach. Comprehensive Psychiatry, 45, 88-94. Manuscript
  48. Breteler, M.H.M., Hilberink, S.R., Zeeman, G., & Lammers, S.M.M. (2004). Compulsive smoking: the development of a Rasch-homogeneous scale of nicotine dependence. Addictive Behaviors, 29, 199-205. Abstract

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